Friday, September 22, 2017

Open Up Your Broken Heart


The news (local, national, and world) is so full of all the things going wrong. When I drive places people cut me off. When I am in the store I hear people being rude to the cashiers. It is easy to think there are no good people left and you have to just look out for yourself and those you love.

However, over the last couple of months, but especially this week I have personally seen so much good. It turns out a tragedy can show you how much good there really is in our world.

On Monday, I finally got enough courage together to call a funeral home to begin planning for Mira's services. Joe and I decided to make arrangements as soon as possible so we did not have to obsess over them and could get it out of the way to focus of Mira's life. Also, so we would not rush important decisions we would later regret. I have been wanting to select a funeral home and make calls for a few weeks. But every time I picked up the phone, I just couldn't do it. Monday I finally made the call. What happened is I spoke to a very kind man who listened to our story and asked right away "What is your daughter's name?" This was such a relief after reading stories of funeral homes who go straight to sale pitches (why not buy a plot too, a whole family plot so you can be with her when its time?) or asking if they are sure you want to bother with a service for such a short life. Justin at Snyder Funeral Homes was kind, respectful, and compassionate. We met with him the next day. Picking out an urn and making arrangements for the death of our daughter as she wiggles and kicked around inside of me was surreal. Justin's compassion and understanding was above and beyond his call of duty as a funeral director. Snyder also charged us much less than is standard (you cannot put a child on life insurance until after they are discharged from the hospital, so this is not an option). While there is still a cost, it is much less than the thousands of dollars that these services usually cost. The kindness we were shown will never be forgotten.

On Thursday, the builders that will be working in our basement (due to the AC flooding it in July) came to our home to start. They were aware I was pregnant from our conversations when they first came out to do an estimate and asked how I was doing. I let them know our situation and was given true empathy and compassion from both the owner and the worker there. Both said they would be praying for Joe and I and asked to pray with us at some point when we were both home. Again, I saw compassion in a place I never expected it.

Today, I received a reply to an email I sent inquiring about 3D ultrasound. 3D ultrasound has been suggested to us so we can have more bonding time with Mira before she is born. It is not medically necessary, so insurance won't cover it, but Joe and I decided the expense was worth it in our circumstances. I emailed the only provider in Lancaster County (Womb With a View) and asked if they felt comfortable giving a scan to a baby with a fatal diagnosis and if the staff could be prepared to be compassionate. The owner replied to me and assured me they could do this, and also said they would give us their full package at no charge due to Mira's diagnosis. This kindness is overwhelming to me. A woman is willing to lose profit in her business to help a stranger.

These times this week that strangers showed us such compassion, kindness, and empathy showed me that God is still working in our lives. He may not have given us the answer to our prayers that we wanted, but he is putting the right people in our lives to help us through it. These are just three examples out of dozens. It can be seen in family and friends/coworkers that give money to help pay for trips to CHOP. It is coworkers who cover things for you without complaining so you can go to the many appointments. It is friends that take you out for meals, movies, and just time away so you can stay busy. It is friends who are far away that text just to check in. It is all of you who talk to Mira everyday and do not shy away from an uncomfortable situation or avoid Joe and I out of fear.

Reading to Miriam Jordan

I don't want to make it sound like everything is fine. It's not. It sucks. Joe and I fall apart on many days, really most days, okay, maybe all days. Planning for our unborn daughter's funeral is awful. Thinking about ways to make the most of this time we have with her, while that time seems to be ticking by unimaginably fast, is overwhelming. Our hearts are broken and will be for a long time. We don't understand why this is happening to us, or why it would happen to anybody. We have questions for God. A lot of questions. We have doubt and anger. We are confused. We are overwhelmed. We are anxious. We are terrified. But it turns out we are also loved and cared for. By family. By friends. By strangers. By God.


There’s two kinds of people
Those who try and those who don’t
And only time will tell which one you were
And it’s alright if you don’t know 
Which way you’re gonna go
Just don’t be afraid to feel it all
And there’s the door
You can quit right now, up and leave 
You don't need this anymore 
Yeah tonight, lights out, shut it down 
Or you can 
Open up your broken heart
And keep on wanting

(The Fray)

Friday, September 8, 2017

I Will Carry You



Tomorrow I will be 20 weeks pregnant.

This thought hit me as I was leaving work today. I thought about how many women I have seen post cute pictures of their 20 week baby bumps on FaceBook and comment on how thrilled they are that they are halfway there. I thought about how if I deliver at 32-34 weeks, this means I have about 3 months left with Mira. I thought about how I don’t ever want to say goodbye to my daughter, and how I certainly don’t want to say goodbye in 3 months. I thought about other pregnant women complain that their rings are getting tight and they are gaining too much weight. I thought about how my wedding ring keeps falling off because, though my stomach is growing, I’m not gaining any weight and actually losing it from other places on my body because I am too sick and stressed to gain any like I am supposed to. I thought about my friends who are “nesting” and planning showers as I am planning a funeral. I felt angry. And jealous. And bitter. And sad. But, I am doing this for Mira, so I also felt love. Because I would do anything for her.

“Even in madness, I know you still believe… 
I dare you to tell me to walk through fire.” 
(Shinedown)

I know some people have wondered why Joe and I chose to carry Mira for as long as I can and to deliver her. Some people have even asked. I have a question for you. If you were told your child had three months to live, would you chose to end their life now so you could start to move on? So you wouldn’t have to care for them for that extra three months? No, of course you wouldn’t. Why should I? Mira heart beats strong, she moves and shows us pieces of who she is. She is alive. She is a person. She is a child. She deserves to live every day that God grants her. She deserves to to die with dignity and respect when that time comes, not through a medical procedure designed to end her life. No, I will continue my pregnancy, I will deliver my daughter and hold her in my arms and show her love and comfort as she passes. It will break my heart. It will break Joe’s heart. We will do this so we can meet our daughter and give her the honor and grace she deserves.

“There were photographs I wanted to take
Things I wanted to show you
Sing sweet lullabies, wipe your teary eyes
Who could love you like this?
People say that I am brave but I'm not
Truth is I'm barely hanging on
But there's a greater story
Written long before me
Because He loves you like this
So I will carry you
While your heart beats here
Long beyond the empty cradle
Through the coming years
I will carry you
All my life
And I will praise the One Who's chosen me”
To carry you
(Selah)

I am so sad that I cannot spend a lifetime with my daughter; I am sad for me and I am sad for Joe. I am not sad for Mira. She will be in a wonderful world where she will know only love and comfort. She will know that her parents love her more than anything. She will never know fear or pain. She will never have a broken heart. I feel sure that anything she will miss by not living long on Earth will be greatly replaced by all she gets to see and experience in Heaven. God will show her the things I wanted to show her. And I will never stop loving her.

And a man took my hand said don't worry, 
Your momma's gonna be alright.
Then He opened the gate and I followed Him in...
And His love is the one true emotion
Heaven knows no fear, no pain
I never got to set my wheels in motion
They loved me just the same
(George Canyon)

Over the next three months I will keep talking to Mira. I will keep reading to her. I will teach her about her Mommy and Daddy. I will make sure she knows what a wonderful man her Daddy is. I will learn more about what she likes and does not like. And I invite anyone who knows me to do the same. Don’t pretend that she isn’t there when you see me, she is. Say hi to her, tell her about yourself. She can hear you. Science says so. And I know so, because I can feel her react. She is every bit alive as you and me.