Thursday, March 19, 2020

Bereaved Motherhood During a Pandemic


It has been quite a while since I posted anything here.  Partly out of simply being busy.  Busy loving my job, busy being a wife, busy teaching, busy with appointments, busy, busy, like everyone! But more so because it’s been a tough time waiting and hoping for another baby to love while continuing to face the lifelong grief of losing Mira.  I have not been in a place to want to share the pain of waiting, even though I still (and always will) love sharing about Mira and believe sharing about grief is so important



But today, I have so many thoughts that I want to write about.

Let me just start by saying COVID-19 sucks.  It sucks for everyone.  And there are so, so, many specific groups it sucks extra for.  And, yes, my mother taught me not to say ‘sucks.’  But this warrants it, right Mom?  It is terrible for the elderly and those with preexisting conditions for obvious reasons.  It is terrible for those with depression whose symptoms worsen with isolation.  It is terrible for those on the Autism Spectrum who find a disruption in routine more than just inconvenient.  It is terrible for those working in healthcare.  It is terrible for small business owners, hourly service workers, and all of us who live paycheck to paycheck. 

It is terrible for beavered parents though too. You may not have thought of that one, and that is okay. ( I am sure there are many groups of people that I do not realize how this could affect them.) But because you may not realize how this impacts us, I wanted to take some time to talk about how COVID-19 feels as a bereaved mother.  I honestly thought it was just me at first, but then I saw the comments and posts pouring out on the online support groups I am a part of, and though each person’s story and specifics are different, I think I can overwhelmingly say, this is extremely tough for beavered mothers. (Though I want to make it clear I am not trying to say we have it worse than other people, but each group that is struggling has a unique point of view and I want to offer ours, or at least mine.)

The first thing that hit me when the threat of COVID-19 became serious in the US, was that this feels so much like when Mira died.  Not the intense pain and grief, obviously, but the ‘emotional’ atmosphere.  The feeling is so similar in so many ways, but I am not just seeing Joe and I react to it and I am seeing EVERYONE.  The feeling is a PTSD trigger for sure (not in a Millennials overuse the word ‘trigger’ way, in a real way).  When Mira died, my world stopped.  Right there. Everything stopped moving.  There was no going to the store.  People stocked my house up with food. Joe and I didn’t go to work for a time.  Our daily routine stopped.  Everything just stopped.  We stood in amazement that the rest of the world kept moving. It was surreal.  Everything for us had stopped.  When your child dies the dishes don’t matter anymore.  You might not get out of your pj’s the whole day, I mean, who cares?  Your child died. 

All the sudden everything is stopping again, but this time for everyone.  Joe’s work has shut down and he is home.  I am working for home, though with much less work than I would have at the office.  We aren’t going out to eat, no one is.  We made sure we have enough food in the house for a week or two to limit grocery runs.  It feels so similar.  But this time we aren’t dazed at how the rest of the world keeps going, because it stopped too.  Though this ‘stopping’ is not as all-encompassing as when Mira died, it is so similar that it wakens those responses in us loss parents, especially those of us with PTSD.

As loss parents, we know people die all too well.  We don’t find statistics comforting.  A 1-3% death rate for this virus means little to us.  We know what it is to be in the minority statistic.  We know each of those people in the 1-3% had loved ones whose world now stopped in a way that is beyond ‘social distancing.’  We know that pain.  We don’t want anyone to feel it.  We don’t want to feel it again.  Statistics hold little to no weight when your infant died, which has a less than one percent chance of happening (America’s infant mortality rate is 5.8 per 1000 live births).

For me, personally, I am not fearful of getting the virus, I am young and healthy.  I take every precaution anyway (as we all should!) to protect our vulnerable, I know the pain of loss, I will not put it on others.  Joe, I know, fears me getting sick.  It is so common for a loss Dad to become over-protective of their spouse, and Joe is for sure.  I tell him I am in no danger even if I get COVID-19 as I have none of the preexisting conditions, the rate of death is less than 1 percent!  But of course, that does not give comfort to someone who lost a child, someone who is already in the less than 1 percent camp.

Us loss parents, we learned that things are not in our control a long time ago.  So, we control what we can.  Our child’s loss was completely out of our control.  We did everything we could to save them.  In the end, it did not matter, we lost them to Heaven.  Things outside of our control are especially tough after that.  It is not in our control if we get the virus, or worse, if our vulnerable loved ones get it.  That is scary.  It is also not currently in our control if we go to work, if we go to the movies, if we go out to eat, or really much of anything else right now.  It is needed.  And I fully support the measures my state has taken to enforce social distancing.  But I think we can all agree it still is not pleasant.  And since last time everything in our world spiraled out our control our baby died, well you might find that us loss parents start holding tight to what we can control as these memories come flooding back.

Last, but certainly not least, to discuss is the jokes about children right now from everyone else in our lives.  The jokes circulating FaceBook about having a ‘baby boom’ in nine months are not funny for us.  As someone who has lost a baby, then waited my due time to be cleared to try to have another, and then got a negative test month, after month, after month, those jokes are little stabs to the heart.  They aren’t meant to be hurtful; I know.  But they are.  Four years ago, Joey and I decided to bring a baby into our home.  There is still no baby here in our house. That sucks.  And 1 out of 8 (infertility stats) of the other couples you know felt a similar stab in their heart when they see those jokes too.  We would LOVE for a couple weeks of forced quality time with our spouse to lead to a baby. 

Beyond the baby boom jokes is all the joking, also sometimes serious, complaints about being home with your children right now.  Parents needing so much wine to get through the time with their children.  They are distracting from work.  They are misbehaving.  The posts are everywhere.  Avoid Facebook?  Doesn’t matter, the jokes are in person too.  At the store.  From friends and family. My coworkers jokingly complain during video meetings that the children are causing chaos.  God, do you know what I would give to have my 2-year-old causing chaos right now?  To have a toddler that I had to balance care for while I worked?  To have the responsibility of caring for my precious little human?  It is okay to complain sometimes, I am sure being a Mom/Dad to living children is especially hard right now.  But don’t forget how lucky and blessed you are to have that child there to annoy you and love you.  Some of us can only dream of that and we are being reminded of that an awful lot right now.

I guess my point is, COVD-19 sucks for everyone.  And there are many specific groups it is pretty terrible for, and one of those groups happens to be beavered parents.  I certainly am not comparing our current struggle to those who are most vulnerable to severe reactions to COVID-19.  I am just hoping we will all remember to think of everyone who this is extra hard for and remember the bereaved Mamas and Daddies when you are praying.

Friday, December 27, 2019

Let Me Be Lighter, I'm Tired of Being a Fighter

Angie Smith says in her book, I Will Carry You (2010), "The truth is that to some degree, every day I have here is another day without her.  I don't know when I will be able to see life any differently."

I have been thinking about this quote a lot over the past 48 hours or so. After getting through Mira's 2nd Birthday, my soul sore and tired, but still okay, Christmas took my breath away.  I guess maybe the typical holiday stress combined with being surrounded by groups of people that Mira was so glaringly missing from, and the pain of trying to be okay in front of others, and then failing miserably lead to my downfall.

I haven't caught my breath since about noon on Christmas and I am not quite sure what to do about it except ride it out and keep trying to go about my days until I get my head above water again. I have been hating feeling this way after getting to an 'okay' place recently. It is completely overwhelming and painful in a way I am at a loss to describe.

Could you beam me up,
Give me a minute, I don't know what I'd say in it
Probably just stare, happy just to be there holding your face
Beam me up,
Let me be lighter, I'm tired of being a fighter, I think,
A minute's enough,
Just beam me up.
(Beam Me Up, P!nk)

So, I went back to this quote just to read Angie's words and feel a little less alone and a little less crazy to be in so much pain 2 years after my loss (as Angie said this further down the loss road). 

Sunday, December 15, 2019

Almost Two Years


Mira’s 2nd Birthday is just two short days away.  It is so surreal to be here.  I have used the word surreal before in relation to this infant loss journey and I just don’t think there is a better word for it. 
I can still feel on my fingertips how amazingly soft Mira’s cheeks were.  I mean, I didn’t know skin could BE that soft.  I can still feel her weight in my arms, and it feels so real if I let myself really think about it.  I can feel that pain and tightness in my chest that I felt when the doctor said she was gone and I broke down, wailing and proclaiming that I needed more time with her, if allow myself to go there.  It feels like it all just happened.  


But also, it feels like another lifetime.  It feels like an alternate reality that I got to feel a life grow inside me and then hold my own child in my arms.  It feels like the happiness of finding out I was pregnant could have been an overly realistic dream.  It feels like so very long ago that I was wheeled out of a maternity ward clutching only a stuffed animal, feeling so numb I’m not sure I knew what was happening. 

So, it is surreal for it two be close to two years ago.

Saturday, November 23, 2019

Writing Out the Beginning


I started keeping this blog during the 17th week of my pregnancy with Mira when things got too overwhelming to update family and friends after visits.  Since then, I have fallen in love with writing out my thoughts and feelings as a healthy way to cope and way to spread awareness about carrying to term, infant loss, and grief.  I also find it helpful to share my posts with friends and family that have remained supportive, so I can share how I am doing with a little more comfort than face to face sometimes brings.

Mira’s 2nd birthday is quickly approaching, and I found myself thinking a lot about the beginning of my pregnancy, the part before I started writing and I was disappointed I did not have a record of that time like I do the rest.  I also know the pain, confusion, and trauma that occurs through a pregnancy with a fatal diagnosis is very isolating.  For these two reasons I decided to write out a summary of what Mira’s life was before I started this blog, from finding out I was pregnant through 17 weeks when I started this blog. I had actually intended it to be a short synopsis, but as I started writing I found that impossible so, if only for me to have it documented (but hopeful for others to read too), here is the beginning of Mira’s story:



Saturday, October 12, 2019

All This Fear


I read this article a week or so ago when a friend shared it and have not stopped thinking about it since.  Then this week, it showed up in my email as well from NILMDTS’ mailing list and I read it again.  And the words still rang true, so I just had to write about it myself.  I encourage you to take the time to really read the linked article as the writer share things so eloquently. 

The reason I haven’t been able to get this list out of my mind, is every single item listed is a fear of mine as well.  Usually when you come across list articles, some apply, and some do not.  This article hit so close to home, it was like the author read my mind and put words to fears I hadn’t known how to express.  I would like to list them here and talk about how they affect personally.  I know getting the words out will help me, and I hope they will help those in my life understand me a little too.